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FINDING A SUPPORT
PROGRAM

The Pulmonary Hypertension Association (PHA) offers an up-to-date list of PAH support groups throughout the nation.

Find a support program near you.

 
Resources

It is important to know that you are not alone. Although pulmonary arterial hypertension (PAH) is a rare disease, there are many individuals like you who are facing similar challenges with PAH—possibly even in your city or town.

You may find it helpful to participate in a local or national PAH support group where you can talk with other people who have PAH. You may also find reassurance in sharing your thoughts and feelings with a friend, relative, or healthcare professional. Your PAH healthcare professional is one of the best sources of information, and may be able to help you find a support group or professional counselor in your area.

There are a number of patient and professional organizations that can provide information, resources, counseling, and peer assistance to individuals with PAH and their caregivers.

  • Pulmonary Hypertension Association—An organization dedicated to providing support, education, advocacy, and awareness to the PAH community (www.phassociation.org)
  • National Institutes of Health—Provides an online library produced by the US Department of Health and Human Services, where you can research health topics, including PAH (www.nih.gov)
  • Scleroderma Foundation—Because up to 15% of people living with scleroderma may be diagnosed with PAH, you may want more information on scleroderma and connective tissue disease. The Scleroderma Foundation is a national organization for people with scleroderma; it provides support and education to patients and funds research into the disease (www.scleroderma.org)